How do folks here handle the feeling that they're just waiting, not serving a purpose, and being a burden on their family as well. - eviltoast

I wake up, I eat, I read a little, I go back to sleep. I wake up, I eat, I read a little, watch a show with my wife, go back to sleep. I try not to eat more than 1500 calories because my activity level is so low I’ll get fat if I go above that.

What’s the end game here?

EDIT, FOR CLARITY:

I can’t work. I need to sleep like 14 hours a day. I’m exhausted all the time. I get fatigued after about 5 to 10 minutes worth of any labor, including things like going upstairs or loading a dishwasher. My hands shake all the time, to where I can almost not clip my own fingernails anymore.

I work a job for years and retired from it there’s plenty of money coming in. I just find myself in a place now where this chronic, undefined illness has taken over my life.

  • Melatonin@lemmy.dbzer0.comOP
    link
    fedilink
    English
    arrow-up
    4
    ·
    3 months ago

    Good stuff, and very positive! I’m sure the diagnosis is key. I’ve got nothing except what it isn’t so far, and I know if it’s long COVID then it’s bad if I exercise so I’m holding off.

    • SoleInvictus@lemmy.blahaj.zone
      link
      fedilink
      English
      arrow-up
      5
      ·
      3 months ago

      Obligatory not a doctor but, if it’s long COVID or you suspect it’s long COVID, look into mast cell activation disorders. They’re often triggered by an illness or injury - mine was triggered by a massively stressful situation combined with getting COVID. Anecdotal, but every person I’ve personally known who has ‘long COVID’ ended up being ultimately diagnosed with MCAD once they saw a knowledgeable doctor and their symptoms markedly improved after treating it as such.

      If you ever have any questions or need anything, feel free to drop me a message. We all have to stick together!