How do folks here handle the feeling that they're just waiting, not serving a purpose, and being a burden on their family as well. - eviltoast

I wake up, I eat, I read a little, I go back to sleep. I wake up, I eat, I read a little, watch a show with my wife, go back to sleep. I try not to eat more than 1500 calories because my activity level is so low I’ll get fat if I go above that.

What’s the end game here?

EDIT, FOR CLARITY:

I can’t work. I need to sleep like 14 hours a day. I’m exhausted all the time. I get fatigued after about 5 to 10 minutes worth of any labor, including things like going upstairs or loading a dishwasher. My hands shake all the time, to where I can almost not clip my own fingernails anymore.

I work a job for years and retired from it there’s plenty of money coming in. I just find myself in a place now where this chronic, undefined illness has taken over my life.

    • LouNeko@lemmy.worldEnglish
      2·
      3 months ago

      I recently got surgery and during my healing period I felt severely disabled. I was in constant pain and had severely reduced mobility. Of course nobody expected me to do any heavy lifting or work. But what made me happy was doing small things nonetheless that weren’t expected of me that helped others. For example I was obviously the last one to leave the bed in the morning. But I would still try to straighten out the bedsheets, puff out the pillows and open the window to let some fresh air in. There are small simple things one can do around the house that in sum amount to a lot. Most people rather do the big chores all at once but neglect small but constant maintenance. If somebody could keep up with the small stuff, others would likely very much appreciate it.