How do folks here handle the feeling that they're just waiting, not serving a purpose, and being a burden on their family as well. - eviltoast

I wake up, I eat, I read a little, I go back to sleep. I wake up, I eat, I read a little, watch a show with my wife, go back to sleep. I try not to eat more than 1500 calories because my activity level is so low I’ll get fat if I go above that.

What’s the end game here?

EDIT, FOR CLARITY:

I can’t work. I need to sleep like 14 hours a day. I’m exhausted all the time. I get fatigued after about 5 to 10 minutes worth of any labor, including things like going upstairs or loading a dishwasher. My hands shake all the time, to where I can almost not clip my own fingernails anymore.

I work a job for years and retired from it there’s plenty of money coming in. I just find myself in a place now where this chronic, undefined illness has taken over my life.

  • ShunkW@lemmy.worldEnglish
    8·
    3 个月前

    Also you should know that there are other diseases that can cause similar symptoms. I have mixed connective tissue disease. It causes me to have tremors, sleep constantly, and my biceps and calves hurt intensely after a little effort. It’s debilitating. It took me a year to get diagnosed.

    • Drusas@fedia.io
      2·
      3 个月前

      I’m not convinced that I don’t have a connective tissue disorder. It sounds so much exactly like what I deal with, but I have been told that I don’t have one. I’ve been told “maybe ME/CFS”, but that doesn’t explain all of my symptoms, particularly the most debilitating–the muscle fatigue and pain.