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Disabled fantasy: Being able to sit in the room with all the doctors who ever asked if you were maybe just making your symptoms up…while they experience your symptoms. And ask them if they’re making them up
Alt Text:
Disabled fantasy: Being able to sit in the room with all the doctors who ever asked if you were maybe just making your symptoms up…while they experience your symptoms. And ask them if they’re making them up
There’s experimental meds for fatigue due to long covid? Would you feel comfortable sharing wahr this medication is? I sincerely hope that those meds work for u!!! Fatigue is… tiring (ba-dumz). But honestly, I think fatigue is such an underrated symptom that so many people don’t understand…
The experimental meds are basically anything they gave someone for another reason which also seemed to have a positive effect on their daily energy levels.
So far I’ve tried: low dose naltrexon, mestinon and low dose aripiprazole. The first two had only negative effects while the last gives me a few more hours that I’m awake per day. From sleeping 20 hours in the worst case to about 12-16, I still can’t do shit but at least I’m awake.
Thank you very much! Glad to hear that one of them could give you at least some relief, hope that your baseline improves further and that you got something nice to spend your time awake